I have a friend whose baby has Down syndrome. Her little girl is about four months older than Alisa. We met through social media, and our friendship formed quickly into a bond of understanding and camaraderie as we both journeyed on this path we did not choose. We have since met in person, but the majority of our interactions have taken place through emails and text messages.
Early on, when Alisa was still in her newborn stage, I wrote to my friend about the struggle of my deep and abiding love for my baby, but also the deep and overwhelming grief I felt in her diagnosis. The grieving would come in waves so that some days were peaceful, while others were filled with sadness. My friend understood these feelings because she, too, was walking the same road. On that day in that particular email, I told my friend how not a day had gone by that I did not think of or see Down syndrome in Alisa.